DeSaulnier Announces Action Taken to Advance Private Bill for Isabel Bueso

September 9, 2020
Press Release

Washington, DC – Today, Congressman Mark DeSaulnier (CA-11) announced that the House Judiciary Committee voted to advance a bill he authored to allow Isabel Bueso and her family to remain in the United States so Isabel can continue to receive treatment for her rare, life-threatening disease (H.R. 4225). The next step in the process is a vote on the bill by the U.S. House, which has yet to be scheduled.

“Isabel is a true example of someone who has followed all of the rules. She and her family came to the United States legally, she has participated in medical trials that have helped save American lives, and her family re-applies every two years to stay in the U.S. Staying in the United States has helped save Isabel’s life, and passing my bill into law will give her and her family the security they need to focus on Isabel’s health,” said Congressman DeSaulnier.

Isabel rose to national notoriety recently as the face of the Trump Administration’s cancellation of medical deferred action, which led to people like her with rare, life-threatening diseases facing deportation. Isabel, joined by her family, came to the United States legally from Guatemala to receive treatment for Maroteaux-Lamy Syndrome, also known as Mucopolysaccharidosis Type VI. Her participation in medical trials helped identify an effective, life-saving treatment, which the drug manufacturer says Isabel cannot receive in her home country of Guatemala. Isabel and her family have lawfully resided in the East Bay since being invited here for those trials, graduating summa cum laude from Cal State East Bay. Before her treatment was discovered, Isabel was only expected to live to 7 years old. She is now 25.